The ACRM Limb Restoration Rehabilitation Networking Group (LRRNG) promotes high standards of practice and education, and identifies opportunities for collaborative research among interdisciplinary professionals with common interests in the care of people with limb loss, their rehabilitation, and enduring prosthetic device enablement. Task forces will provide networking opportunities for LRRNG members to promote resource creation for evidence-based best practice guidelines, coordination of advocacy efforts surrounding clinical aspects and access to care for limb loss patients, and identification of research questions and methodologies in the field.
Limb loss affects 1.6 million Americans, a number expected to double by 2050. It is as sobering to call it a part of the human condition, as it is to realize that its narrative has somehow been overlooked. A person living with limb loss requires different medical considerations (surrounding homeostatic changes to their constitution and physiology), largely unknown and unmet in clinical practice. Public consciousness may sweep along professional impression in considering prosthetic technologies settled matter, when such beliefs remain unexamined, and the field bereft of critical knowledge and benchmark data.
The mission of the LRRNG is to advance the field of limb restoration rehabilitation by providing opportunities for interdisciplinary collaboration for research, education, and advocacy for standards of practice.
A PERSONAL JOURNEY
At age nine, Dr. Gerasimos Bastas had a fibroblastic osteosarcoma in his right proximal tibia. He underwent chemotherapy, numerous operations and lengthy hospitalizations, over the years, culminating in an elective transfemoral amputation at age eighteen. He pursued his undergraduate studies at Brown University, matriculated at the dual MD/PhD degree program at Boston University School of Medicine, and completed his residency training in PM&R at the University of Pennsylvania, always finding himself reflexively appreciating the reasoning, scope and need for long-term medically-directed rehabilitation to ensure enablement and well-being. His desire to be of service, as a physician, has always been a confluence of avid intellectual interest and the belief, borne of experienced certainty, that restoring and safeguarding someone’s health and function are among the most meaningful of contributions. Having lived the gamut of experiences in dealing with limb loss and the current state of prosthetic technologies, as both patient and medical provider, Dr. Bastas feels privileged and humbled to recognize his wants and needs in the very real wants and needs of others. As a practitioner, he wants to tend to those needs, and as a researcher, he wishes to explore possibilities where solutions and knowledge are lacking.
Limb restoration rehabilitation is a space requiring true interdisciplinary discourse, among physicians (in rehabilitation, other medical and surgical specialties), therapists (physical, occupational, respiratory, nutritionists), physiologists and biomechanical engineers, to mention but a few.
We invite you to join the ACRM LRRNG as we provide the networking and action space required to consolidate practice guidelines, bolster education, identify critical research questions to be jointly solved, and meaningfully contribute in the lives of those living with limb loss.
HOW TO JOIN THE LRRNG
- Email LRRNG Co-Chairs, Danielle H. Melton, MD and Prateek Grover, MD, PhD AND Terri Compos to be added to the LRRG listserv
- OR update your Member Profile to include the Limb Restoration Rehabilitation Group by following the instructions below:
- Login to the ACRM Members Portal
- Click “My Information” in the left navigation
- Click “Edit/View Information” in the horizontal navigation
- Scroll down near the bottom of the page and select all groups in which you wish to participate.
- Click “Save.”
Non-members are invited to participate free of charge in any ACRM networking group by registering for an introductory membership.
- Click the JOIN NOW button below to complete a “Non-Member/Visitor Form.
- Scroll down near the bottom of the page and select all networking groups in which you wish to participate.
- Click “Create Account” (bottom right) to finish the transaction.
- Continuing education opportunities
- Task force participation (practice guidelines, advocacy, research directions)
- Collaborative research opportunities
- Development of position papers
- Opportunity to plan educational courses for the ACRM Annual Conference
- Experience outstanding peer-to-peer learning
- Advance evidence-based clinical practices for improved outcomes
Three opportunities to participate in the LRRNG
Step up for a leadership position on the Executive Committee of the Limb Restoration Rehabilitation Networking Group (LRRNG) in one of two open positions:
- Secretary – responsible for taking meeting minutes or
- Communications Officer – responsible for twice-weekly social media postings on LRRNG activities and limb restoration rehabilitation topics. Contact LRRNG Co-Chair, Prateek Grover to learn more.
The LRRNG Research Task Force, co-chaired by John Danko and Janet Panoch, is seeking new members interested in contributing to a white paper on Patient and Family Education. Contact them to learn more.
Congratulations to two ACRM members featured in Captivating! magazine
Congratulations to Ana Calvo, who was featured on the cover of the April Limb Loss Awareness Month issue of Captivating magazine where she shared some advice with those learning to accept a newly acquired disability. Stacy Flynn, ACRM Limb Restoration Rehabilitation Networking Group (LRRNG) Task Force Chair, was also featured in this issue on page 19 as the author of the article, “What Does Limb Loss Mean to You?” Read More >>
LRRNG seeks collaborators to promote education & research
The Limb Restoration Rehabilitation Networking Group (LRRNG) is seeking partnerships with Special Interest Groups and Networking Groups at ACRM to promote education and research aligned with population needs, and evidence-based practice in areas of common interest. To explore a collaboration on any of the following topics, contact LRRNG Co-Chair, Dr. Prateek Grover.
- Limb loss epidemiology, access and barriers: nationally and internationally
- Limb loss anatomy / physiology
- Clinical practice aspects e.g., phantom pain, wound care
- Risk factor overlap with other medical comorbidities, e.g., CVA, MI
- Limb loss technology
- Limb loss gait analysis
All conference attendees are automatically ACRM members. Non-members receive a 6-month introductory ACRM membership automatically with registration. Put your member benefits to work right away—join an ACRM community group and attend a community group or task force meeting! PLEASE NOTE: Dates and times are subject to change. Please check the Online Program for the most up-to-date information.
Wednesday 6 NOV
8:00 PM – 9:00 PM
Limb Restoration Rehabilitation Networking Group Meeting (open for ALL to attend)
Location: 4Q, 4th Floor