(Significant Pediatric Rehabilitation information from the Networking Group)
Seeking Symposium Collaborators
This spring the buzz is all about the Hot Topic for 2018. Get involved by sharing your evidence-based research on TRANSITIONS: the Pediatric Rehabilitation hot topic for the ACRM 2018 Annual Conference. Contact Angela Ciccia.
Connect & Participate
THE PRNG is always looking for ways to increase member engagement and we would like to feature you and your research, job promotions and connect you with others! Please contact Shelley Dean or Robbie O’Shea to start sharing today!
Join a Task Force or 2018 Work Group!
Find a topic of interest to you and reach out to the contacts listed below to learn more and participate.
Pediatric Outcomes Task Force
CONTACTS: Cristina Sadowsky, MD
Beth Warnken, MOT, OTR/L
We are looking for PRNG current and “wanna be” members who are interested in pediatric outcomes.
Documenting meaningful functional outcomes in pediatric rehabilitation is challenging and, frequently, disease specific. Long term follow up is challenging, given the multitude of scales and measuring tools, their reliability and validity, age and diagnosis specificity. This task force’s main goal is to create a comprehensive list of validated outcomes, disease and age specific and propose a streamlined approach for long term functional follow up.
Proposed steps in the process:
- Comprehensive review of evidence based literature looking at existing disease and function specific outcomes
- Critical analysis and streamlining of those outcomes that are robust enough to apply longitudinally over time and across diagnosis
Technology in Pediatric Populations With Disabilities Task Force
CONTACT: Gloria Vergara-Diaz
Technology is developing at an extremely rapid pace. There is an opportunity to leverage this technology to improve patient care as long as we understand the capabilities and limitations of the available technology and identify patient needs. This task force was put in place for a specific purpose: to maximize the therapeutic potential of technology in pediatric populations with disabilities.
The mission of the task force is to facilitate the development and integration of technology in the assessment of functions and symptoms as well as in the delivery of therapeutic interventions in pediatric populations with disability. To that end, the group will first develop a list of priority areas within which technology could have a significant impact. We will then review the currently available scientific evidence and identify knowledge gaps as well as present challenges and opportunities on how to use the technology.
Web Resources Work Group
CONTACT: Glendaliz Bosques Mendez, MD
Peer/Parent Experiences Work Group
CONTACT: Shelley Dean, OTD, OTR/L
Robbie O’Shea, PT, DPT, PHD
Exploring “StoryCorps” type app for interviews of child/parent dyads in rehabilitation
Perinatal CVA Work Group
CONTACT: Shelley Dean, OTD, OTR/L
Work group to examine:
- Multi-disciplinary clinic models for the treatment of pediatric stroke.
- App as a parent resource: Pediatric Rehabilitation Roadmap
Gender Differences in Pediatric TBI: Pre & Post Puberty Work Group
CONTACT: Janet Niemeier, PhD, ABPP-RP, OPR
Workforce for People with Disabilities Work Group
CONTACT: Drew Nagele, PsyD, CBIST
Workforce Investment Opportunity Act – America manages $10 billion (12% of the national budget) with a mission to employ people with disabilities.
PRNG Fundraising Project Work Group – T-shirts
CONTACT: Angela Ciccia, PhD, CCC-SLP
Volunteers for Podcast Feedback Work Group
CONTACT: Angela Ciccia, PhD, CCC-SLP