GIRLS AND WOMEN WITH ABI TASK FORCE
Girls & Women with ABI Task Force
Our task force benefits from the contributions of women with lived experience of brain injury, persons involved in advocacy, clinicians and researchers from around the world.
Toronto Rehabilitation Institute, University of Toronto, Disabled Women’s Network of Canada, Brain Injury Canada, Women and Spinal Cord Injury Task Force
To advance scientific knowledge, develop standards of practice, and advocate for the appropriate care of girls and women with acquired brain injury and as such address the inequity of research on this area. To promote knowledge mobilization with respect to research on girls and women with acquired brain injury in collaboration with stakeholders.
2018 Call for Proposals
- Complete systematic projects examining sex/gender relevant research relevant to cognitive rehabilitation
- Work with APMR around sex and gender journal reporting guidelines
- Mentorship and continued symposia/conference presentations
- Transform to gender networking group and have a stream throughout 2018 conference
- 2018 Deborah Lee Price Girls and Women’s Task Force Poster Award
- Increased membership and activities, monthly calls
- Public Education: Presentation on Capital Hill
- Presentations of numerous symposia internationally
- Systematic reviews; Pelvic health, assistive technology
- Availability and access to care issues
- Examination of journal reporting policies
- Support for Brain Injury Consumers: Scholarship
- Synergy with International Networking Group
- Presentation at NIH Women and TBI workshop/White paper
CURRENT RESEARCH PROJECTS
Task force co-chairs, Angela Colontonio and Yelena Goldin, note progress on advocacy via Capitol Hill presence, as well as increased awareness, through “Pink Concussion” events on sports injuries & domestic violence.
Furthermore, the task force has been working hard to shed light into specific consumer needs; members have been surveying the literature in order to construct an appropriate questionnaire which would be ultimately distributed to consumers nationally through the Brain Injury Association of America, as well as locally via brain injury associations. For more information, please contact Monique Pappadis.
Several other projects involve a study on understanding disparities in access to care for women, and a systematic review using a sex/gender dimension in the analysis. There are several upcoming conferences including a National Institute of Health (NIH) workshop in December; the NIH meeting is to result in a white paper.
Several members, including Angela Colontonio, Peg Nosek and Anne Forest will be presenting at conferences on standards regarding sex and gender, as well as conducting a session on technology.
There are several collaborations underway, including a systematic review of cognitive rehabilitation in aging and older adults (with Chronic TBI task force members) and a project reporting on language use and gender in rehabilitation articles (with the Spinal Cord Injury ISIG team of experts including, Heather Taylor, Peg Nosek).
For more information please contact Yelena Goldin. This task force is currently seeking new leaders to carry projects forward; they are also considering growing into a networking group, given the cross-cutting nature of the field.