GIRLS AND WOMEN WITH ABI TASK FORCE

Girls & Women with ABI Task Force

Meet us in Atlanta! ACRM Conference Fall 2017

WED 25 OCT  10:00 AM – 11:30 AM:  BI-ISIG Girls and Women with ABI Task Force Meeting     REGISTERED YET?


CO-CHAIRS

Angela ColantonioAngela Colantonio,
PhD, FACRM

Yelena GoldinYelena Goldin,
PhD

MEMBERS

Our task force benefits from the contributions of women with lived experience of brain injury, persons involved in advocacy, clinicians and researchers from around the world.

COLLABORATING ORGANIZATIONS

Toronto Rehabilitation Institute, University of Toronto, Disabled Women’s Network of Canada, Brain Injury Canada, Women and Spinal Cord Injury Task Force

 

MISSION

To advance scientific knowledge, develop standards of practice, and advocate for the appropriate care of girls and women with acquired brain injury and as such address the inequity of research on this area. To promote knowledge mobilization with respect to research on girls and women with acquired brain injury in collaboration with stakeholders.

CURRENT RESEARCH PROJECTS

In addition to ongoing advocacy and support of care and research for girls and women with ABI, we currently have several projects people can get involved in.

  • Disparities in access to care for women: Survey of the literature to get an understanding with respect to disparities in access to care among women with TBI. The literature search is complete and the next stage is to review the literature and then integrate it.
  • Specific consumer (girls and women with ABI) needs:  First step is to survey the literature, then develop a questionnaire, and distribute it to consumers nationally through BIAA and local BIAs in order to get a sense of what their perceived and especially unmet needs are.
  • Pelvic Health Project: P. Nosek leading a paper on pelvic health and women with disabilities which includes brain injury.
  • Cognitive rehabilitation systematic review using sex/gender approach: Members will conduct reanalysis of existing review process that stratifies data by sex/gender.
  • Publication subcommittee: Advocacy to journals such as Archives of Physical Medicine and Rehabilitation to integrate reporting requirements on sex/gender. We praise the Journal of Head Trauma Rehabilitation for integrating this. Also thanks to Glenn Collins who has provided some leadership from publications in the Cardiology field.
  • Best poster award: will provide an award for best poster relevant to our task force
  • Mentorship on sex/gender across rehabilitation: upcoming symposia on pain will address sex/gender not only in TBI but also MSK disorders and cardiac conditions
  • Fundraising for consumer involvement: have approached leadership for innovative ways to fund consumer involvement in Task Force and attendance at ACRM meetings. We have strong support by women with lived experience in our task force but are limited in their ability to attend ACRM meetings.
  • Monthly meetings: our task force meets monthly and will have an early morning meeting on Wednesday of the ACRM conference in Chicago.