(Significant Pediatric Rehabilitation information from the Networking Group)

 

Seeking Symposium Collaborators

This spring the buzz is all about the Hot Topic for 2018. Get involved by sharing your evidence-based research on TRANSITIONS: the Pediatric Rehabilitation hot topic for the ACRM 2018 Annual Conference. Contact Angela Ciccia.

 

Connect & Participate

THE PRNG is always looking for ways to increase member engagement and we would like to feature you and your research, job promotions and connect you with others! Please contact Shelley Dean or Robbie O’Shea to start sharing today!

 

Join a Task Force or 2018 Work Group!

Find a topic of interest to you and reach out to the contacts listed below to learn more and participate.

Cristina Sadowsky

Cristina Sadowsky

Pediatric Outcomes Task Force

CONTACTS: Cristina Sadowsky, MD
Beth Warnken, MOT, OTR/L

We are looking for PRNG current and “wanna be” members who are interested in pediatric outcomes.

Documenting meaningful functional outcomes in pediatric rehabilitation is challenging and, frequently, disease specific. Long term follow up is challenging, given the multitude of scales and measuring tools, their reliability and validity, age and diagnosis specificity. This task force’s main goal is to create a comprehensive list of validated outcomes, disease and age specific and propose a streamlined approach for long term functional follow up.

Proposed steps in the process:

  1. Comprehensive review of evidence based literature looking at existing disease and function specific outcomes
  2. Critical analysis and streamlining of those outcomes that are robust enough to apply longitudinally over time and across diagnosis
Gloria Vergara-Diaz

Gloria Vergara-Diaz

Technology in Pediatric Populations With Disabilities Task Force

CONTACT: Gloria Vergara-Diaz

Technology is developing at an extremely rapid pace. There is an opportunity to leverage this technology to improve patient care as long as we understand the capabilities and limitations of the available technology and identify patient needs. This task force was put in place for a specific purpose: to maximize the therapeutic potential of technology in pediatric populations with disabilities.

The mission of the task force is to facilitate the development and integration of technology in the assessment of functions and symptoms as well as in the delivery of therapeutic interventions in pediatric populations with disability. To that end, the group will first develop a list of priority areas within which technology could have a significant impact. We will then review the currently available scientific evidence and identify knowledge gaps as well as present challenges and opportunities on how to use the technology.

Glendaliz Bosques

Glendaliz Bosques Mendez

Web Resources Work Group

CONTACT: Glendaliz Bosques Mendez, MD

Shelley Dean

Shelley Dean

Robbie O'Shea

Robbie O’Shea

Peer/Parent Experiences Work Group

CONTACT: Shelley Dean, OTD, OTR/L
Robbie O’Shea, PT, DPT, PHD

Exploring “StoryCorps” type app for interviews of child/parent dyads in rehabilitation

Perinatal CVA Work Group

CONTACT: Shelley Dean, OTD, OTR/L

Work group to examine:

  • Multi-disciplinary clinic models for the treatment of pediatric stroke.
  • App as a parent resource: Pediatric Rehabilitation Roadmap
Janet Niemeier

Janet Niemeier

Gender Differences in Pediatric TBI: Pre & Post Puberty Work Group

CONTACT: Janet Niemeier, PhD, ABPP-RP, OPR

Drew Nagele

Drew Nagele

Workforce for People with Disabilities Work Group

CONTACT: Drew Nagele, PsyD, CBIST

Workforce Investment Opportunity Act – America manages $10 billion (12% of the national budget) with a mission to employ people with disabilities.

Angela Ciccia

Angela Ciccia

PRNG Fundraising Project Work Group – T-shirts

CONTACT:  Angela Ciccia, PhD, CCC-SLP

Volunteers for Podcast Feedback Work Group

CONTACT: Angela Ciccia, PhD, CCC-SLP